Maria Isabella's Continence Surgery

Last year we scheduled this continence surgery for Maria Isabella. Basically they did one called MACE which is to control her pupu and Mitrofanoff to control pipi. She also had reimplantation of her urinary catheters to fix her reflux.

So this Wednesday she went into surgery. At the beginning we didn't really have much information about the surgery and we thought it was going to be a simple one. But it was harder that we had expected. Even the preparation for surgey was hard.

To prepare her for surgery, they had to clean her intestines. We started at home with fleet enemas, and we thought that was going to be enough. But when we arrived at the hospital, we learned they had to clean her system even more with this medicine that she had to drink. The medicine is very salty and bad flavoured so they had to introduce a catheter into her nose to her tummy. That really frightened me. And it was very uncomfortable for her. She was also frightened.

The surgery wasn't a simple one. It lasted almost 6 hours or more. She has tube all over her belly. At the beginning I doubted if it was worth make her go through all this, but I think we made the right decision. Hopefully she will soon recover.

Today she was able to eat solids. She had chicken nuggets, mashed potatoes, and white rice. She felt bad after she ate. And she still has diarrhea after she eats, and has been running low grade fevers. Doctors say it's normal.